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Hamish Jollow
Hamish Jollow
Hamish Jollow
Story
Hi there!
I'm completing a swim challenge this summer in order to raise money for a cause that is close to our hearts called hyrdocephalus.
Hydrocephalus can happen to anyone at any age although he most common time is at birth or early infancy. There are currently no ways to prevent or cure hydrocephalus, it is a life long condition. There are 2 treatment pathways for hydrocephalus, shunting and third ventriculostomy (ETV surgery), 75% of people with hydrocephalus are treated with a shunt. Shunts have been around for 50 years and have improved over this time. Unfortunately shunts have the highest failure rate of any medical implant through infection and blockages. The Shunt Registry that was established in 2013 needs ongoing funding to assist with shunt failure rates and prevent hydrocephalus sufferers from having multple shunt revisions and lengthy hospitalisations.
The Hydrocephalus Support Association is only a small organisation and needs ongoing support to raise hydrocephalus awareness and funds to keep the Shunt Registry going. Like all medical conditions further funds are also required for research into hydrocephalus.
Thank you for taking the time to read about hydrocephalus.
If you are able to contribute a small donation to our cause we are very grateful.
Donations made through this platform are secure and will be remitted directly through to the Hydrocephalus Support Association.
Thanks so much for your support!
Lots of Love
Hamish Jollow💙
The Hydrocephalus Support Association Incorporated
The Hydrocephalus Support Association ;(HSA) is a not-for profit organisation whose core mission is to support people with hydrocephalus and their families to overcome disadvantage, strengthen their abilities and successfully live independently. The philosophy of the organisation is underpinned by peer support and advocacy, and the association is run by volunteer members for the benefit members.
The HSA undertakes a number of activities to achieve the core mission of the organisation, including:
- Quarterly meetings and newsletters to bring people with hydrocephalus and their families together.
- Awareness raising and dissemination of information, research and treatment of hydrocephalus
- A national conference held by the HSA every three years.
- Advocacy for individuals with hydrocephalus to support independent living.
- Volunteer welfare officers to support members.
- A members’ only Facebook group to facilitate sharing of information about and experiences with living with hydrocephalus.
- Dedicated fundraising and grant application programs to raise funds to:
- Enable the HSA to continue to support members and their families;
- Fund research into the causes, treatments and long-term outcomes for people living with hydrocephalus.
These programs include fundraising events and applications to philanthropic, not-for-profit, private and government organisations for funding.
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